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Showing posts from 2015

EEG Evan

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Last month we were leaving a football game and thought Evan had a seizure. He was slumped over, Cory picked him up he said it felt like he wasn't breathing. Evan than threw up all over and it seemed like he wasn't all there. We than ended up calling the doctor when we got home to see if we should take him to the hospital to get him checked out. We described what happened and how he was. he wasn't his self when Cory got him ready for a bath . After about an hour he was more like his normal self and they told us to keep an eye on him. I was able able to get him into his neurologist the next week and he thought we should get him back in to get another EEG. We should hopefully hear by the end of the week from the neurologist how the test went.  getting the wires off after sleeping

Emma's 3rd Birthday-Bubble Guppies

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She loved the bubble guppies balloons After she saw the cake she was crawling around saying"Cake, Cake Cake, Bubble". Becoming a pro and unwrapping presents.

A little update

It has been a hectic summer. Which equals to no updates for anyone to read, and now the updates are going to come more. School as started. We are moved, more about that later. And I only have one child semi still at home. And the rest are gone the rest of the day at school. But I hope everyone will back and continue read the blog. Please leave a like or comment so I actually know about how many people are still reading. Thanks
It has been crazy around, Everything from softball, to IEP meetings for Evan and Owen for next school year. I can't believe that school is almost over with this year. Alyssa will be in 4th grade, Owen 2nd, and Evan in Kindergarten.  Emma will start Early Intervention in the classroom in the fall also. Emma is walking pretty good with her walker. They are working on getting on Orthopedics approved by insurance, hopefully it will be approved soon. Alyssa is enjoying softball, the team has only lost one game so far this season. She has been improving throughout the season and doing well. Owen is loving math at school, he really likes his teacher. I am hoping he will get a teacher just as great as the teacher he has now. Evan is doing good. He is going to be 5 on Sunday. I am getting excited to make him some cupcakes for his birthday, with bright colors.

Dying Eggs

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Softball

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Beach Pictures

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Some Pictures I had on my camera from the beach.

Crazy....

It has been crazy around here. I have been busy with doctors appointments, to early intervention appointments, softball. activity days, and things around the house. Now I  have been getting ready for Alyssa's birthday. I can't believe she is going to be 9 on Sunday. I am hoping to get to more posting on here in a couple of days. Stay tuned for some pictures and updates.

Owen and Alyssa losing teeth....

While over spring break Owen lost his two front teeth with in two weeks after he lost one tooth on top.  Alyssa lost a tooth yesterday.

CVI (Cortical Vision Impairment)

We found out on Friday that Evan has CVI, click on this link and read more about Cortical Vision Impairment:   (Cortical Vision Impairment) .

More Testing....

I have gotten a call about something else the geneticist thinks we could test. I have been meaning to sit down and write this down so there was an update. She mentioned whole exome testing. The testing can take up to 15 weeks. So far the testing would just consist of Evan, Cory and I are going to be tested also, they want to have our DNA to look at when they look at Evan's. If anything abnormal comes back they will test Emma. If there is anything that some of the kids could carry to their children they will test Alyssa and Owen.

Evan's Test Results...

I found out the results for Evan's genetic testing. They tested him for  creatine Kinase, and 7 DHC to test for Smith-Lemli Opitz. Both tests came back normal, He doesn't have Smith-Lemli Opitz, and his muscles are fine.  They aren't going to test for anything else right now, unless the geneticist thinks of something before Evan and Emma have to go back in for a yearly appointment.  He still needs to have a renal ultrasound, and a follow up with a  Urologist.

Indian Sands

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